So, now I have introduced the blog, I shall tell you a bit about me. As previously mentioned, I have a 13 month old little boy, called Joseph, who has SWCAH. He unfortunately has been a bit slow on the mobility front, although very recently he has just started to "bum" shuffle. He shows no signs of wanting to crawl, but is happy to walk around with support by holding my hand. As well as the CAH, he has a couple of other health issues that we have had to deal with and learn about but to look at him, you would never know anything was wrong (as with many CAH sufferers).
I also have an amazing husband, who has been majorly supportive from day one of Josephs' arrival into the world. He adores Joseph, and is a very good Dad to him.
We are a young family, but enjoy what we do have, and Joseph's health problems, has just made us learn to appreciate him so much more.
I went back to work for two days a week once Joseph got to 7 months old (initially when he was diagnosed, I thought I would never go back to work whilst he was young), however, it has been good for all of us for me to go back. Joseph loves going to a local nursery, and his key worker is very good and understanding of his problems, and takes the medications very seriously. It was very scary entrusting this to someone else to begin with, but now, I don't worry about it. Maybe sometimes if he is a bit under the weather I get anxious, but generally I love how he enjoys going in to see all of his little friends.
I would say, our life will never be "normal", but then what is "normal" anyway?? I love our life and our family unit very much, and as long as we are happy, we should be able to get on just fine.
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normal life would be oh so booring darling, and do not worry when he is ready he will do his own thing, thank goodness everyone of us is different and long may it be so.
ReplyDeleteLife has a funny way of working we all have gifts some can not be measured in the normal way but they are still there if we know how to look for them and appreciate them
love dad
When Joseph was diagnosed with CAH at 15 days old (which was scary enough - my baby was 6 weeks old so one couldnt help but be scared),no one in our family knew what it meant or what to expect as the months have rolled on. It is awful to visit Joseph in hospital as his aunt and as a mum of 2 children.
ReplyDeleteI just want to say to Becki and James how amazing i think they are with what they go through physically and mentally. Physically with the drugs daily on the specific times, the hospital appointments and the unscheduled visits too. Mentally with being able to let go enough to allow Joseph to go to nursery and mix with other children and grow up like a normal little boy.
As Becki has said you wouldnt think Joseph is poorly. He is a very happy little boy with a smile for everyone. I know as an onlooker that it is very hard to watch your loved ones go through the uncertainty. Becki and James have proved time and time again that firstly mothers intstincts are ALWAYS right and secondly how it doesnt have to be such a bad thing to have a child with a condition. It is a testiment to how strong their characters are and how loving they are as a family. They tried for over a year to fall pregnant with Joseph and i never hear them say why me, why us. They are grateful just to be parents.
In closing i am not sure if i have said what i wanted to right or not but know that i think they are both amazing (Becki more so - sorry James) and i am so proud of them for fighting through this. We dont know what the future holds as Joseph has other issues alongside his CAH (not 100% sure on the right term so i dont want to get it wrong) that are scary but they are amazing and i want them to know that we are here to help in any way shape or form.
Becki is the lady to talk to for those who need a friendly ear and some guidance. She is honest and helpful and personally i would not be without her for the support she has shown me throughout my own issues (PND) when my boy was born.
I hope this makes sense to all and enjoy reading about our little JJ.
Good luck at the hospital on Tuesday.
All my love, Sam xxxx xxxx