Been away for a while

Well, I haven't posted for quite a while. I have moved house recently and didn't have internet for a while and just sort of got wrapped up in stuff.

Have been feeling a little fed up lately the last few days. Joseph went into hospital last week for a couple of days due to having a bout of gastorentoritus. Had been a long time since he had last been admitted into hospital so felt it was a bit of set back and I always find I cope fine at the time, but I have a few down weeks after. Thought it would have got easier by now, but apparently not.

Also yesterday, had an appointment with the cardiologist, as Joseph also has an ASD (atrial septal defect (a hole in his heart)), however we came away feeling slightly disappointed. I think people think I am being silly, because the good news was that the whole hasn't got any worse, however, the doctor didn't actually have a very good look during the echocardiagram because Joseph was wriggling. My husband had him pretty well restrained, he was just crying, so the doctor gave up pretty quickly, so basically we walked away not being much more knowledgable than we were the day before. We don't know if the hole is still there, or not. We go back in two years.

I had spent weeks worrying about the outcome. If the hole remains, it means keyhole surgery for Joseph when he reaches 5 or 6 years old, which sounds simple, but its still pretty scary as he will have to go under a general aneasthetic.

Maybe I am just being negative, but I think the last couple of weeks make it difficult to see the positives all the time.

The CAH itself is being pretty well maintained. Joseph is slightly small for his age, but his endincronologist is unsure if this is just his growth pattern or the steroids. Regular bloods and monitoring will keep tracks on it. Joseph is just started to take his first steps and he is speaking quite a lot now, so that is all very exciting.

Hopefully I will post more regularly again.