Introduction

Hi all,

My name is Becki. The reason I have started this blog is because although there are some amazing Congenital Adrenal Hyperplasia support groups on the internet, I noticed there are no UK blogs. Although CAH is a worldwide condition, some of the medical phrases and medication names internationally, may be slightly different to the UK.

I have a one year old boy, who was diagnosed with Salt Wasting CAH at 15 days old when he went into Adrenal Crisis. I remember so well to this day, being so overwhelmed and scared that my little lad had a potentially fatal illness (if not managed properly) that I had never even heard of.

There is a lot to discuss on CAH, both medically and emotionally for families or sufferers, and sometimes, due to the rarity of the condition it is difficult to talk to someone that may not understand.

Even today, over a year on, there are always new things that I am learning about the condition, and how to come with various hurdles along the way.

I am hoping that this blog (welcome to all users) will help people that maybe, just need to vent, ask some advice, or even just to read about others in similar situations to get a better understanding.

Please do not be afraid to speak up or talk about anything. Unfortunately, I may not be able to give any medical advice as I am not qualified to, however, just if you would like to discuss it, I am here to listen.

I hope that between us, we can build up a support group to help eachother through the tough times and the exciting times, to discuss amongst ourselves in order to all try to get a better understanding of living with CAH, whether it be a relative, child, friend, or even ourselves.

Thanks all and I hope the future of this blog will help us all.

Becki